Special Enhanced Edition for iBooks – $.99!

The Invisible Illness Survival Guide - Special Enhanced iBooks Edition screenshot

Today I’m excited to present the iBooks edition of The Invisible Illness Survival Guide. Far from just another edition of the book, this one is “Made For iBooks,” sporting a brand new, full color design, interactive elements, and extra resources and content. A few screenshots to give you an idea:

The Invisible Illness Survival Guide - Special Enhanced iBooks Edition screenshot

The Invisible Illness Survival Guide - Special Enhanced iBooks Edition screenshot

The Invisible Illness Survival Guide - Special Enhanced iBooks Edition screenshot

The best part: For a limited time, it’s on sale for just $.99! That’s cheaper than any other edition of the book — and you’re getting way more bang for your buck.

Speaking of which, here’s a quick breakdown of the differences between the five editions of The Invisible Illness Survival Guide:

  • iBooks Edition: the most definitive version of the book, with special interactive enhancements and additional content, available only on Apple devices
  • Print Edition: for those that want to hold and turn real paper pages; features the same design as the Kindle Edition
  • Kindle Edition: the original version, which has images and icons included
  • Kobo Edition: same as the Kindle Edition
  • Nook Edition: a bare bones version without many of the images and no icons; Nook’s editing software made most of the book’s custom formatting impossible, so this stripped-down ebook costs a little less

If you haven’t picked up your copy of The Invisible Illness Survival Guide, don’t wait. The $.99 special price won’t last long!

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Don’t Panic, It’s Just Another Hurdle

I have a stress fracture on the top of my left foot. I believe the exact location is the “third metatarsal.” I have to wear an immobilization boot for two to four weeks.

When I got the news, my reaction was kind of like…

Why? Well…

Stress fractures are small bone cracks caused by overuse, usually stemming from a strenuous, repeated activity. There’s no getting around the fact that it came from my Hapkido classes, the martial arts I began studying back in March. I go three times a week, and it’s by far the most strenuous activity I engage in.

I’m not complaining, because when I signed up for Hapkido, I did it knowing it would come with a physical cost due to the many, many things wrong with my body. Lupus, Fibromyalgia, POTS, and everything else would block my path every step of the way. I was also overweight and out of shape. It was going to take a toll.

And it has. There have been injuries and Lupus flares and one wicked sinus infection and things no one but me even knows about.

But I’d do it all again. Without question, without hesitation, I wouldn’t change a thing.

(Not even all the times I make a complete fool of myself in class. Which is often!)

Don’t let life’s obstacles and setbacks affect your goals. Unfortunate things are going to happen; you can’t stop them. But you do get to choose how you react to them. Will they sideline you? Or push you harder toward your goals?

I’m choosing to press on. This is just another hurdle. I’ll clear it like I have all the others. Besides, when you live with never-ending muscle and joint pain 24/7/365, one more ache doesn’t exactly bury the needle.

I’m still going to Hapkido class. My next belt test is a week away, and I’m not missing it. The injury and this silly boot will be gone in a blink.

Stress fracture? Pfft.

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Making Money When You Have a Chronic Illness

It doesn’t pay to be sick.

When you have a chronic illness, generating income can be difficult. For some, it’s impossible. Living with constant pain and constant fatigue is stressful enough; not being able to pay the bills shouldn’t be an added issue — but it usually is. Because in addition to all of your usual stuff — mortgage, insurance, car payments, utilities, etc. — you’re also burdened with ever-increasing medical bills.

What an utter absence of anything resembling a blessing!

How do you live with a chronic invisible illness and make income? How do you provide for your family if your quality of life prevents you from working?

This has been a huge struggle for me since I was diagnosed with Lupus four years ago. Working is made so much harder by pain, fatigue, and brainfog, along with regular stomach problems, frequent colds and sinus infections (Lupus compromises your immune system), and countless other “little things” that add up to a whopping big mountain standing between me and the ability to pay the bills.

For many of us, office work is out of the question. There are several days a month when I’m completely unable to function — and I never know when one of those days is going to strike. How can I be counted on to work regular 9-to-5 hours in that situation? No employer in the world is going to be terribly understanding when you don’t show up to work.

There’s also retail, which typically requires standing on your feet all day and interacting with customers in a pleasant way. The standing part is not possible for me and most other chronic illness patients; and I can’t speak for you, but when I’m having a bad day physically, it’s just not possible to fake warmth and pleasantness. And you don’t even want to be around me when I’m on Prednisone!

So… Short of attempting the nightmare that is the application for disability (a loaded topic for another day), what can you do?

Personally, I’m always looking and praying for that One Big Idea. The thing that will turn our situation around. Something I can do, right now, that will make an immediate and profound impact on my family’s crushed-under-debt finances. And there are options and possibilities. You have to be careful, though. There are tons of opportunities out there, but too many of them will pay you far less than you’re worth.

Here are some of my favorites, all of which can be done exclusively from home. The best part: there’s no entry fee for any of them.

YouTube

YouTube is not what it used to be. Sure, you can still upload any video you want, but it’s a serious business now. There’s big money to be made on YouTube if you can attract a large enough following. There are tons of vloggers and video creators who make their entire living on YouTube — and many of them are rolling in it.

Pros: Just look at the trending videos to see that anyone can create a video that millions of people will watch.

Cons: Consistent posting of videos is required if you intend to be successful, as is good equipment like a quality camera and powerful editing software.

Fiverr

Whatever you’re good at, someone out there will pay for it. Fiverr lets you charge five bucks a pop for performing simple tasks.

Pros: Fiverr is a brilliant idea, and its system couldn’t be simpler.

Cons: You’ll need a truly unique skill or idea to stand out from the crowd.

Etsy

Crafty? If you can create handmade goods — decor, clothes, accessories, etc. — Etsy is the best place to sell your stuff.

Pros: A huge customer base comes already built in.

Cons: Like most everything else on this list, the challenge will be attracting customers within a very crowded market.

Skillshare

People are always interested in learning new skills to broaden their horizons or create their own businesses. Skillshare is a for-pay website where anyone can create an educational course about pretty much anything. Courses consist primarily of instructional videos, but often there will be downloadable documents and templates, as well. You get paid based on how many people take your course.

Pros: It’s such a simple, smart business model, it’s hard to believe no one thought of it before. Skillshare’s system and user portal are silky smooth, easy to use, and beautiful to look at.

Cons: As with YouTube, the hard part is making quality video content. You’ll need top of the line recording and editing equipment to make your course worthwhile.

Write an eBook (or Blog)

Everybody knows that blogs are a big deal online. You’re reading one right now. Monetizing them can be challenging, but it is doable. An easier way of creating income for writers is instructional ebooks. You write it, publish it on Amazon, Nook, iBooks, etc., and you’re good to go. As I said before, whatever it is that you’re good at, there are people in the world who will pay to learn from you how to do it.

(Did you know that many great ebooks started out as blog content?)

Pros: If you’re a writer, creating an ebook won’t be much of a challenge. It will probably even be fun! It’s a once-and-done project, too, though you’ll want to put some time and effort into promotion.

Cons: Amazon and Barnes & Noble have online systems for self-publishing, and both of them are criminally clunky and unreliable. It’s as if they were built by people who utterly despise ebooks, writers, and words.

Create T-Shirts

The specialty t-shirt market is booming. There are dozens of websites where you can find unique tees these days, many of them populated with designs created by talented artists. You don’t have to be a gifted artisan to create a successful t-shirt, though. Zazzle, Cafe Press, and others make it easy to create a delightful t-shirt design. Most of these places let you put your words or images on other kinds of products, too.

Pros: Inventory and shipping are not your responsibility. They’re handled entirely by the website.

Cons: The website takes a not-small percentage of your profits.

Sell Your Photos

Right now, somebody somewhere needs a photo you already have. Take your most artsy or beautiful photos and turn them into cash by uploading them to smartphone apps like Snapwire, Agora, Foap, and others. They’ll make your image available to publishers, who pay a royalty fee to use it. Anyone can sell their pics, and they’re treated like any other product: you get paid based on how many people pay to use your photo.

Pros: With just about every app I’ve tried, it couldn’t be easier to upload and post your photos. Look on your own camera or phone and chances are, you’ve already got at least a handful of pictures that are unique, beautiful, and potentially valuable.

Cons: People looking for stock photos, like print magazines or big-name websites, tend to need very specific niche imagery. Matching what you have to what they need can be a serious challenge. Don’t expect to make big bucks at this unless you’re a pro.

Create an App

I know that unless you’re a programmer, the very thought of this seems like an impossible task. But hear me out.

Apple has made a priority of teaching programming to anyone who wants to learn. To that end, they’ve created this amazing iPad app called Swift Playgrounds (“Swift” is Apple’s app language) that subversively teaches you the principles of coding in the form of a fun, clever, user-friendly video game. It’s a free download, and literally anyone can pick up programming skills by using it.

Pros: Finally, learning how to make apps is accessible to anyone. You don’t have to have a degree in computer programming. You just need an idea.

Cons: You have to have an iPad. Swift Playgrounds is not an overnight investment; expect to spend weeks if not more learning the fundamentals of Swift. Fortunately, the game is so cute and fun to play, you won’t mind.

Do Small Tasks

Head over to Amazon Mechanical Turk, an online system where anyone can sign up to perform quick, easy tasks like proofreading a product listing or giving an honest opinion. You’ll get paid for each one you complete, and if you’re efficient, you can easily accomplish dozens in a single day. Also see: Field Agent, Easyshift, Gigbucks, Task Army, and more.

Pros: No prerequisite skills required. If you have a computer with an Internet connection or a smartphone, you can perform any of these tasks.

Cons: The majority of available tasks pay very small amounts of money. Some pay more, some pay as little as a penny. So you’ll need to accomplish hundreds of well-paying tasks to see any significant income.

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Where’s Our Representation?

The big hotness in Hollywood right now is “diversity.” All races, ethnicities, orientations, and whatnot are being represented in film, television, stage, video games, novels, and more.

So where’s the representation of chronic invisible illness sufferers? People like me and you, with Lupus, Fibromyalgia, Dysautonomia, etc.? It’s true that some better-known illnesses like Depression and Multiple Sclerosis are featured sometimes on TV dramas — particularly the ones that take place in a hospital setting — but when was the last time you saw someone in a movie or on television suffering from Crohn’s Disease or Chronic Fatigue?

(Just don’t get me started on House. I will always despise that show for the stupid “It’s never Lupus” meme it spawned. To this day, you can look up “Lupus meme” on Google and the vast majority of results will have Hugh Laurie’s smug face on them. Thanks to House, more people know Lupus as a punchline than a real, life-altering, life-threatening disease.)

It’s said that nearly half of all Americans suffer from one or more chronic invisible illnesses. Nearly half! That’s incredible. But the public at large still knows so little about these diseases that one of two things is happening here: either Hollywood has no idea how to depict a chronic invisible illness, or they choose not to because they believe that things like a heart attack or a cancer diagnosis provide better dramatic fodder.

How can everyone be getting representation in pop culture these days if the day-to-day reality of nearly half of the American population is being ignored? I wonder how long it will be before we get equal representation. What we need is a prominent Hollywood writer or other creative who’s willing to learn about Lupus, Fibro, or any other chronic invisible illness and then show what it’s really like, with care and attention to detail.

And that’s a problematic notion for TV and film, because it couldn’t be a one-off story arc. If it’s talked about once and then never mentioned again, then it’s completely missed the point. Chronic illnesses never go away. You don’t have to talk about them all the time, but you can’t pretend they’re not there, either.

Right now, the measurement of chronic invisible illnesses in entertainment is at zero. We’ve got a very long way to go.

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I Feel Bad for My Kids

You know how when you have a terrible cold or the flu, and all you want to do is stay in bed? If you’re young or single, you might be able to get away with that, but parents are a no-go. There are kids and responsibilities and stuff. Now imagine feeling sick every single day of your life — while trying to be the parent your child needs.

This is what life is like for chronic, invisible illness patients who also happen to be parents. You love your kids, you would do anything for your kids — even die for them — but you’re saddled with severe limits to what you can and can’t do for or with them.

I have two children, both under the age of ten. I have a brilliant, sweet son, and a beautiful, tenderhearted daughter. They’re funny and crazy and smart and wonderful and I love them unconditionally. But I feel bad for them, because they never know which “Daddy” they’re going to get.

Will today be a day for fun, playful Daddy who rushes into the room to tickle them and hug them and play with them? Or is this a day when of sick Daddy, who can’t concentrate on what they’re saying, can’t move a single muscle without hurting, and seems like he’s in a bad mood because he can barely keep his eyes open? That second guy is seen a lot more often than the first one.

It’s not fair to them. They deserve a dad who can do all of the usual “dad stuff.” They don’t deserve a dad who can’t go outside and play because he has to avoid direct sunlight. They should have a dad who can give them quality time, not one who’s either too tired to move or desperately trying to find work to help pay his endless medical bills (and all of the other bills that are affected by an inability to work consistently).

Right now, “quality time with Daddy” usually equates to sitting next to me on the couch, particularly on the bad days. I talk to them and listen to them and cuddle them (my daughter especially loves cuddling!), and they’ll bring me drawings and Legos and other stuff they’ve made, looking for approval. Of course I always love everything they do and rave over their creations. Sometimes they’ll watch me play video games, or I’ll watch them. On really good days I might play a board game with them.

But that’s about all I can offer. There are many who tell me that the love I give them is enough. That it’s all they need.

That’s not reality, that’s a song lyric. A fairy tale lens clouding up real life.

They need love, yes, absolutely. But they have tangible needs, too. They need a normal dad who can do things with them and for them. Instead they’re stuck with this sick, grumpy guy. And the worst part might be that most of the time, they don’t realize that this isn’t what other kids have. They have no idea what they’re missing out on.

I’m not on my deathbed or anything; I do okay most of the time. But on those bad days when I can’t function, my heart is flooded with regrets because my horrible, invisible, chronic diseases are affecting my kids just as much as they affect me.

And that’s not okay. So I fight. And I’ll keep fighting. I’ll rail against my limitations. I’ll push myself ever-harder. Because I have to hope that one day things are going to get better and easier. And because those two kids deserve it.

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